Misha Angrist takes stock of a number of issues related to personal genomics in an article published today. Do people want access to their genomic data? Should people have access? What should they expect to discover from a genome sequence? What has been his experience thus far?
Misha also draws attention to one under appreciated aspect of obtaining a personal DNA sequence: there’s more to genomics than personalized medicine. Genomics might also be interesting and worthwhile even without obvious direct benefits.
“If you’re interested in medicine, you should talk to your doctor,” [George Church] says. “But if you’re interested in seeing a revolution close up and participating in research, then you should [be free to] mess around.”
Sober-faced enthusiasts may be the bootstraps necessary for the field of personal genomics to achieve lift-off. According to Misha:
“This is where we are in the era of personal genomics: some modest amusement, a few interesting tidbits, a bit of useful information, but mostly the promise of much better things to come. The more people are allowed–encouraged, even–to experiment, the sooner that promise can be realized.”
Read the article.
Misha Angrist. Personal Genomics: Access Denied? Even if we can’t interpret the data, consumers have a right to their genomes. MIT Tech Review. September/October 2008
See, Misha’s blog GenomeBoy.com
See, PGP-10 profiles
In the interview, Esther gives her views on the history of commerce on the internet, problems with health care as we know it in the U.S., and the future of genetics.