“Controlling your life online isn’t about a set of guidelines for everyone to follow. It’s about being aware of where you might be giving up control and making conscious decisions.”
This is taken from an excellent meditation by Vanessa Fox on living life online (she tagged the post “onlineness” which I had to look at a couple times to find the root word).
One topic she touched on briefly is how a person’s online activity can reach beyond the individual and touch the lives of others. What is acceptable practice in these circumstances? People disagree. Here is a clip:
As powerful web technologies are applied to the practice of medicine the relationships between patients, health care providers, and scientific researchers will be reconfigured in new and interesting ways. Watching the early stages of this transformation has made me in recent weeks begin to reflect more on how this reconfiguration is going to impact medical ethics. I’ve come to the tentative conclusion that while we are in the very early stages of “medicine 2.0” we are in an even earlier stage of “medical ethics 2.0” and this may have some unforeseen consequences for early adopters of these new web technologies.
Health and Human Services (HHS) have released V2 of their family history tool. This one is light-years better than V1, principally because it is now web-enabled.
This week’s issue of the CDC’s Genomics Weekly Update is now online. The Let’s Go Surfing section consistently introduces useful websites from around the world and this week is no exception. The Centre for Genetics Education is based in Sydney, Australia. It provides "current and relevant genetics information to individuals and family members affected by genetic conditions and the professionals who work with them."
The Centre offers a guide for recording family health information entitled "The Importance of Your Family Health Information." (pdf) From the introduction:
"Many common disorders such as diabetes, heart disease, cancer and mental illness can run in families. If you have knowledge of your family health history, it may be possible to predict, prevent or treat health problems that have affected previous generations…[A] record of family illnesses…may help your doctor to diagnose and prevent health problems by recognising patterns of illness that may run in your family."
Lots of quality educational material at the webpage, e.g. for those individuals interested in learning more about a genetic disorder, the Centre provides disorder information sheets (for Australian citizens only I presume). A similar service is offered by the U.S. National Library of Medicine: the Genetics Home Reference.