Esther Dyson on the Digital Health Revolution
Scribe Media’s Peter Cervieri interviews Esther Dyson, board member of 23andMe and one of the PGP-10.
In the interview, Esther gives her views on the history of commerce on the internet, problems with health care as we know it in the U.S., and the future of genetics.
Charlie Rose Interviews Thoughtleaders in Personal Genomics
Interviews with David Agus, Co-Founder, Navigenics, Dean Ornish, President, Preventive Medicine Research Institute and George Church of Harvard Medical School’s Personal Genome Project.
Previously on Charlie Rose, Esther Dyson discusses her participation in the PGP. See also, an interview with Francis Collins.
Video Round-up: Esther Dyson on Charlie Rose, Spencer Wells on Colbert, and important video I can’t show you on genetic discrimination
Esther Dyson was interviewed on the Charlie Rose Show this past week. Charlie Rose ends the show by saying to Esther, “I can’t wait to see your genome”. I think this is the first time I’ve ever witnessed this expression being used like this — said with such endearment too! — but I’m sure it won’t be the last. (A google search for this phrase shows zero results at the time this post was written.)
The first twenty minutes of the show are mostly about Esther’s involvement in the Personal Genome Project (PGP) [disclosure: I work for the PGP]. The discussion doesn’t stop at genomes or health; the rest of the show ventures into the future of commercial space travel, the internet, cookie monsters, personalized search, AI and more. Esther never ceases to inform and inspire me, and challenge the way I think. I’m so glad she is among the folks that will be pioneering personal genomics for the rest of us via the PGP. Check it out:
False Alarm: The Celebrity Meme
There is this meme that has been going around about how “celebrity genomics” is in some way very naughty and should be avoided. This meme keeps popping up since it was first inaugurated in a news article by Erika Check entitled “Celebrity genomes alarm researchers”. Here were some of the quotes from that article:
Juan Enriquez on Genomics
TED continues to post videos of talks from past conferences. They recently posted Juan Enriquez’s presentation from 2004 entitled “Decoding the Future with Genomics.” Here it is:
Juan also wrote the popular “As the Future Catches You“. The book and the TED talk draw upon a lot of the same content. They also draw upon his evocative style. A snapshot of a page from his book shows how he uses design to help express a message:
Here is the same sentence without the creative typography:
| If someone spent her entire life reading a copy of one person’s genome . . . she would barely finish . . . much less understand . . . or remember . . . what she read |
Less effective with plain old text or just less interesting?
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Be sure to check out some of the other TED talks. My favorite talks so far are those by Hans Rosling (data never looked so good) and Malcolm Gladwell, a great storyteller. Who knew tomato sauce had such meaning to reveal about human preference? There is no one perfect tomato sauce, there are only perfect tomato sauces…
Video: Rep. Louise Slaughter reflects on 12 year old GINA
Here is Representative Louise Slaughter (D-NY) discussing the importance of GINA on the House floor yesterday:
(If you’re reading via RSS, you might need to go to my site to view the embedded video)
The bill passed in the House 420-3. If you’re curious, the 3 Nays were Representative Jeff Flake (R-AZ), Representative Ed Royce (R-CA), and Representative Ron Paul (R-TX).
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H.R. 493, Genetic Information Nondiscrimination Act (PDF)
Full proceedings from the Congressional Record, April 25, 2007, ~20 pages (PDF)
Hodosh to lead Archon X-Prize for Genomics
The Archon X Prize for Genomics has appointed Marc Hodosh to lead the $10 million competition. Hodosh is an entrepreneur and tech geek who recently chaired a robotics competition for segway inventor Dean Kamen.The Archon X Prize will be awarded to the first group that can “build a device and use it to sequence 100 human genomes within 10 days or less, with an accuracy of no more than one error in every 100,000 bases sequenced, with sequences accurately covering at least 98% of the genome, and at a recurring cost of no more than $10,000 per genome.” In other words, the winner must be able to sequence 100 human genomes in 10 days for a $1 million.
The X Prize Foundation has published a video describing the competition, check it out:
So far three teams have registered to compete, including VisiGen Biotechnologies, 454 Life Sciences, and the Foundation for Applied Molecular Evolution.Here are the competition guidelines (PDF).Want to compete? Register here (PDF).
Video: Virtual Genomic Counseling vs. Face-to-Face
The PBS television station KQED in San Francisco recently aired a very thoughtful segment comparing online genomic counseling through DNA Direct to traditional face-to-face counseling via UCSF. Check it out:
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KQED, Genetic Testing through the Web. Feb 20, 2007.
Full discolure: I am employed by DNA Direct.
Video: Craig Venter on Colbert Report
Hat tip, Pedro and to those who forwarded this to me.
Entrepreneurial Thought Leaders: Ryan Phelan
The CEO of DNA Direct (full discolure…and my boss/friend/mentor) recently gave a talk at Stanford as part of the Entrepreneurial Thought Leaders (ETL) seminar series. In her presentation, she tells the story of her life as an entrepreneur and her experiences with founding and operating a number of ventures, most of them in the consumer health arena. Among them were Planetree & Direct Medical Knowledge (later acquired by WebMD). Check it out:
Video, Audio Podcast MP3, and also available via iTunes (search ETL or Ryan Phelan)
I highly recommend checking out the whole series of speakers and the archive.
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Recently Written
- Podcast about the Personal Genome Project via Harvard Medical Labcast
- Calling all enthusiasts: Misha Angrist talks personal genomes
- Esther Dyson on the Digital Health Revolution
- Charlie Rose Interviews Thoughtleaders in Personal Genomics
- The Gene Collector: George Church and the PGP in Wired Magazine
- Laboratory Science: From Penal Colonies to Video Game Arcades
- Parallel Dataverses: Doppelgangers in Medicine and Recreation
- Disintermediation: Why Genomics is More Like Insulin Injections than Napster
- Biocensorship for the Biocentury?
- Big Things for Love
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About this blog
Even if you didn't know it before this moment, getting a personal copy of your genome sequence is a lifestyle choice that you may want to consider.
So are you going to take the personal genomics plunge? How are you going to decide? What are the issues? How are other people making this decision? Who is doing interesting work relevant to these choices? By the way, what is relevant? These are some of the issues this blog is intended to address.
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